A Love Letter to Maeve and Isaac from Sex Education

Throughout my time at school, the sex education that we received just simply never applied to me. The messages were very much tailored towards people without limited mobility, for example. I would ask questions about how it could all be made more accessible sometimes, when I was feeling brave, yet always got the same answer: I’ll be honest with you, I don’t know. Looking back, I realise that nobody had prepared themselves for this. Being a wheelchair user gave other people permission to perceive me with an innocence that they wouldn’t attach to everyone else my age, I suppose. Besides, it didn’t feel important for them to get educated or provide any relevant information because they couldn’t imagine someone else wanting to explore with me, either. Instead, they would generally choose to make jokes about my dating life, which isn’t really possible to shake off. At this point, it’s alarmingly easy to become consumed with the narrative that disabled bodies are inherently undesirable and expecting otherwise is naïve. I used to cry a lot about that. There is something especially cruel about having these needs whilst simultaneously being told by society at large that they don’t deserve to be fulfilled. But I could still sit in the classes and listen to my peers be taught about the importance of their own pleasure, though. Anything for the pretence of inclusivity.

So, with all of this, I’m not ashamed to say that I cried when I first watched the sex scene between Maeve and Isaac on Sex Education. Whilst I understand that the pairing itself is a somewhat controversial one, this arguably makes George Robinson’s character even more important. I mean, how refreshing is it for a disabled person not to be portrayed as entirely innocent and pure? We are complex and unlikeable at times, too. Even before any sex was involved, I had never seen representation that felt so real. I had never seen someone like me, a wheelchair user, being treated like an adult by other people before. Isaac exists unapologetically loudly in the lives of everyone around him, which is so incredibly validating to watch, as someone who’s spent so many years feeling invisible within these stories.

“talk to your partner about what makes sex enjoyable and accessible for you. disabled people deserve and can have great sex.” in black text on a pink background.
You’re welcome. You can follow Intimately on Instagram here.

Moving on, the sexual tension between these characters led to a quietly intimate conversation about what would be most comfortable and pleasurable for them both. This communication is rarely present in any media portrayals of sex, which gives the false impression that it isn’t necessary for a good time. Talk to each other, people. But these questions were handled with great care – they weren’t there to satisfy morbid curiosities or create shock value. In that moment, it was just about two people wanting to enjoy themselves and respect each other’s boundaries. Really, is there anything sexier than that?

Perhaps my favourite part of this, though, came when Maeve told her best friend afterwards. There were no questions about the mechanics at all, which I had been expecting. Bracing myself to feel weird and awkward. To my pleasant surprise, it was just immediately accepted. Because it doesn’t matter. A wild revelation, I know, but these experiences are no less valid because they exist outside of the conventional.

In short, this is why multi-faceted media representations of disabled people are invaluable. Not only do they show that we are capable and deserving of love beyond anyone’s wildest expectations, but they also challenge everyone else to do better and get creative when it comes to intimacy. I have always thought that conventional is boring, anyway. I would like to thank the writers at Netflix for breaking down these barriers, which I wouldn’t have been brave enough to do alone.

PS: I also wrote a vulnerable piece for Scope about what it means to be a disabled person in a relationship and all the effort that it’s taken to believe I’m deserving, which you can read here.

The Truth about Representations of Disability and Chronic Illness

Recently, the BBC aired a documentary, which promised to explore how damaging it can be when chronically ill people are accused of faking their conditions online. After hearing from the disability community that this was actually dangerously misrepresented, I decided to take a deep breath and watch it myself. In doing this, I wanted to make sure that I had access to all of the relevant information and could articulate my thoughts properly, you know? So, here we are. Let’s sit down and talk about it, please. Education is perhaps most important when we are given yet another reason to stop fighting.

The piece itself is only relatively short, so its narrative became twisted pretty early on. Rather than highlighting the lived experience of this toxicity, it worked towards adding validity to these personal attacks and focused on offering an understanding as to how these doubts might begin to materialise. Alongside this, there was also a conversation about how those with genuine chronic illnesses will exaggerate their symptoms online for attention. Frankly, I still don’t know whether to laugh or cry.

To a certain extent, I am blessed by the fact that I have a permanently visible disability, so my diagnoses are generally taken seriously. Like, I fit the description, right? Being disabled only seems to count when you look like me. Still, just the other day, a new consultant asked me if I ever experience pain in my legs simply from existing. Before my brain had time to properly process the question, I found myself telling her that I was fine and didn’t have too many complex health worries. Of course, that’s not true and I can feel the familiar hum of pain running through my legs as I type this. On Monday, I had a particularly tough session at physiotherapy. So tough, in fact, that I could have very easily cried about it. Yet, whenever she checked in with how I was feeling, I insisted that I was handling the whole thing well. I hate giving the world yet another reason to believe that I am an inconvenience, so would rather just quietly ride the wave instead. I’m working on getting better, but these experiences are important to discuss openly because they are only compounded by issues around chronic illness.

A screenshot of a Tweet by Poppy Field, which reads: “I hate how it’s radical to believe a disabled or chronically ill person, but I believe you. 

Please don’t doubt yourself or internalise recent media ❤️”
It’s not hard to be a decent human being about the things that you don’t understand, okay?

Because Cerebral Palsy is not enough, I also have Ulcerative Colitis. This in itself is not visible, yet it has a disabling impact on my life. When I say that I barely left my bathroom for two years, it’s not an exaggeration. One time, I was fed up of missing so many classes and decided to make an appearance on campus, despite not being anywhere near stable enough for that. It took less than an hour for me to realise that I should be at home, only for my lecturer to run out of the room after me and start asking increasingly invasive questions. This whole experience was deeply uncomfortable, especially since we really didn’t know each other very well. Throughout this time, I was constantly asked to provide letters and test results before any extension on my deadlines would be approved. I had to cancel dates, which always ended with being sent messages saying “you can just tell me if you’re not interested”, even when I tried to offer an explanation. Thankfully, I’m currently on some hardcore medication that has put me in remission. With that said, it does make my hair fall out, which has been an interesting thing to manage. So, what has been the point of this overshare? Nobody would put themselves through this on purpose, truly. It is hard enough. Even though things are significantly better now, I am tired all of the time and it’s a fight every single day not to believe that my life is being wasted. To believe that I can (and will) do more. We should be allowed to search for a sense of community without being doubted. Furthermore, on the very rare occasion that someone isn’t being entirely truthful about their health or the circumstances around it, let’s remember: Münchausen Syndrome is a mental illness and it deserves to be treated with care and compassion. The rest is not a competition.

In conclusion: do better. Also, if you have read this far, please take a moment to educate yourself on Micaela’s story and sign this petition, so that she can stay in New Zealand with her family. I genuinely looked into moving there when the pandemic first began and wasn’t allowed to even begin the process because I’m disabled. Really. This shit happens. Like I said, do better. xxx